A safe and empowered Community for people affected by sickle cell conditions worldwide.
Mission
To advocate for and alleviate suffering of people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.
Objectives
To keep them informed on clinical trials, telehealth, new treatments made available to them about this disease.
To link and provide individuals with resources, tools and support.
To foster greater sensitivity for emergent services
To promote holistic counseling and education services.
Goals
To address challenges of sickle cell sufferers, such as access to care, socio-economical support services, mental health, isolation, peer advocacy and navigation services and holistic follow up services